Eddie Vedder's New Documentary Spotlighting a Rare Disease to Premiere on Netflix

And now, Netflix has picked up Matter of Time, the title of Eddie Vedder 's new project that spotlights Epidermolysis Bullosa ...

Eddie Vedder's 'Matter of Time' documentary lands at Netflix, sets premiere date

EXCLUSIVE: Eddie Vedder, lead singer of veteran rockers Pearl Jam, has been helping to fund a cure for Epidermolysis Bullosa ...
WRAL

Eddie Vedder’s quest to help cure a rare disease subject of new documentary

(CNN) — “Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s ...
MM&M

Pediatric rare diseases are often underdiagnosed. GeneDx wants to change that.

GeneDx, which specializes in diagnostics for rare and ultra-rare genetic disorders, is helping to get kids the diagnostic attention they need as part of Diagnosis is Power. Currently, one in 10 ...

‘Noah,' a Documentary About a Woman With Seven Rare and Incurable Diseases, Acquired by Jambika Docs (EXCLUSIVE)

Barcelona-based sales agency Jambika Docs has acquired the documentary feature "Noah" ahead of the European Film Market in Berlin. "Noah" will have a limited theatrical release in Spain followed by a ...
STAT

Parents of children with rare diseases ask: How long until our CRISPR miracle?

Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...
Nature

Rare diseases in children

SDG 3 - Good health and wellbeing and SDG 10 - Reduced inequalities. This Collection aims to highlight this important area of research and bring together researchers that cover the various aspects of ...
Sentinel & Enterprise

Op-ed: AI and rare diseases — leveling the playing field for patients in rural areas

For many rare disease patients, access to expert care remains out of reach. Families often endure years of misdiagnoses and medical visits before finally receiving an accurate diagnosis. This is often ...
STAT

Don’t let hope expire for children with rare diseases

Across America, millions of parents of children with rare diseases are in a race against time, hoping that new treatments will be developed fast enough to save their kids. Thanks to advances in ...