Living with a rare disease can make you feel isolated, but you are not alone. There are others out there who are living a similar experience. Olcay, who lives with scleroderma, has found community through engaging with her local patient groups, the Turkish Pulmonary Hypertension and Scleroderma Patient Association. This Scleroderma Awareness Month, we feel it is vital to acknowledge the benefits that these groups offer those living with rare diseases. | Boehringer Ingelheim
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Would you like to win £200 this Christmas? All you have to do is complete The University of Cambridge's survey, a patient survey about Systemic Sclerosis/ scleroderma, rheumatology and other autoimmune diseases. This survey asks about your medical relationships, disease symptoms, and health. It should take around 30 minutes to complete (you can pause or stop at any time). SRUK are supporting this study as it will raise awareness about important issues and where more support may be needed, but it
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Wei Ling was diagnosed with Systemic Sclerosis (Scleroderma) in her early 20s, which affected her independence and mobility. Describing herself as being stiff and shiny like a robot due to skin tightening, she stays positive and strives to do even better than others. Help raise awareness by sharing this video and find out more about rheumatological conditions by visiting for.sg/sghrhi. Keep a look out for the last of our series of videos in the coming weeks! #rheumatology #scleroderma #scleroder
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3.4K views · 69 reactions | We’re in #Arizona at Scleroderma Foundation’s National Patient Education Conference raising awareness of #systemic #sclerosis (SSc), one #insidestory at a time. Visit booth #19 to find out how your experiences with SSc can make a meaningful difference for others. | Boehringer Ingelheim | Facebook
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